Well, we made it home around 8 PM last night and it was nice to be home and our family reunited. John and I spent a good deal of the night making me feel human again by cleaning up all the dried gunk on my head and hair and then we both had a great night's sleep. It was so nice to wake up in a familiar environment, in my own bed, and doing my own thing. Nothing beats being home!!!
John will be home with me through Tuesday and then we'll see how I'm doing from there to determine the rest of the week's plan. I will have to go have my staples removed one day next week and will need to find an oncologist to administer my chemo to me here locally so there's still a lot to do in the next few weeks.
Other than being very stiff from the long drive yesterday, I'm in good shape, feel good, and mentally on the ball. Gonna work with the boys to get everything unpacked today and get settled into the routine we'll have for the next few weeks. Visitors are welcome so if you are bored, come on by. If you are squeamish, call first so I can cover my head for you.
DO NOT SCROLL DOWN PAST THIS IF YOU ARE SQUEAMISH!!! I am NOT responsible for anyone fainting or passing out by seeing them.Well, I think that's the biggest part of the update for now. I would not scroll down below this point if you are squeamish for there are some pictures that might be too graphic for some.
Many Huggles and love to all
A safe picture to give a bit of buffer room before things a little more graphic:
So you've stumbled across my blog by accident and you are wondering what is really behind this blog. I can help you catch up quickly. In short, my name is Amy, As of 2000I am years old, happily married to my hudband,John, for 12 years, and have a 12 year old son. Oh, I was diagnosed on August 22, 2007 with a brain tumor.
All the important things (without my daily ramblings) can be found under the heading of beginnings and I would also recommend Updates. You can quickly see them all by clicking on those links. I hope this helps you get caught up with my world.
You can read my posts on surgery to read about surgery in posts written by me during my stays in the hospital and those updated after the fact to fill in all the holes. Following surgery and the discovery that my brain tumor was a Grade Three Anaplastic Astrocytoma, I went into radiation. This was not an easy decision but you can read about it and my decision process in radiation. I did begin having seizures in 2008 and issues with Hydrocephalus/regrowth in 2010/2011 and then chemo in 2011 where I am cuurrently receiving Avastin and the steroid Decradon.
I hope this blog can help others going along the same journey as me. Remember you are not alone.
I wish to post a disclaimer that I am NOT a doctor nor do I play one on TV. Therefore, nothing mentioned in this blog should be taken in the place of your own medical professional. What works for one person may not be the best solution for another. If anything I do in my blog can be brought across, I hope it's that you have to take your life and medical care into your own hands and use all the wonderful tools you have at your resources.
My experience with my brain tumor will not be the experience you have because no two tumors, just as no two people are alike. However, if showing my experience to you can help you on your journey, then I have accomplished a huge goal in my life and that is to help others.
Remember that attitude, support, and God make up 90% of the battle!!! always believe in the positive. god spEED!!!!!