Sunday, October 31, 2010
Saturday, October 30, 2010
We are lounging in the hotel room for another few but then we are going to hit the road for home. It's a bit later than we originally intended but we both were sleeping so great we got a late start. We're both very ready to be back home in our own beds and I'm ready for my own bathroom so I can clean up properly and get my head back to normal feeling.
Friday, October 29, 2010
Ok, sorry I didn't post this immediately but by the time we got back to the hotel I was tired so I rested. Here's the low-down on what we found out at the doctor today.
-- Amy - Fight Like a Girl!!!
Well, this will not be a super long update but I figured I better send something out today since things are changing a bit and I just need to vent a bit as well.
Thursday, October 28, 2010
Well, I've officially been discharged. I am going to get cleaned up and feel normal again and then I'm released to go. We will be staying in Rochester tonight and I have an appointment with my Neuro-Oncologist tomorrow afternoon so we will be staying a second night as well and coming home on Saturday. YIPPEE!!!
I still have at least one doctor I need to see today (the Neuro-Oncologist) but in all essence I have been released by the Neuro Surgeon. Everything looks great, they were very pleased with what they were able to remove, and they agree there is no reason to keep my on the steroids (the NO will make the taper decision though) since they removed an area the size of his fist from my head. Needless to say, swelling should not be an issue. :)
Wednesday, October 27, 2010
Well, if things keep going as they are, they are talking about the possibility of me being released tomorrow. This will be one day shorter than the last one.
Tuesday, October 26, 2010
Monday, October 25, 2010
Well, this will probably be the last major update for around 24 hours. There might be a few updates from John over the course of the day tomorrow but I want to put the message out now that there will not be any proper updates on status of how things are going and he will NOT know anything until around 7 PM CST tomorrow. They are saying it is an 8-10 hour procedure and he will probably not see me for 10-12 hours after I start pre-op at 5:30 AM. Therefore, it is likely to be a quiet day with the exception of maybe a couple of status messages late afternoon as I get moved from op to PACU.
Sunday, October 24, 2010
Thursday, October 21, 2010
I am not typically a whiner but as I sit here at 3 AM this morning having been awaken after only 6 hours of good sleep with a sudden craving for food and to get out of bed, I figured what better quiet time then to discuss the biggest bane of my existence... steroids.
I do know that, while I feel like crud while on the Prednisone, my symptoms with both the more "tolerable to me" steroid and the lessons I've learned has at least made my current episode manageable. It always helps to have a good doctor that understands everyone reacts differently to medications and is able to help you get on what is comfortable and effective for you. I think there's a good chance that had he not agreed that if the Prednisone is taking enough of the pressure and swelling in my head down that I can function fairly normally and switched me to Decadron because that is the standard practice... I wouldn't be sitting here calmly typing or mentally preparing for this next surgery. I would be in a daze and technically unable to make my own medical decisions. (I still often wonder if I would have done radiation so readily after surgery if I had not been on the Decadron. I really don't think I was mentally competent enough at that stage to have been making that decision.)
Wednesday, October 20, 2010
Friday, October 15, 2010
While no one looks forward to any surgery and especially not a second I feel very confident and good about the route we are preparing to take for the latest obstacle for me as a result of the brain cancer world.
Wednesday, October 13, 2010
I'm so far behind on updates I'm not even sure what I have posted about and what I haven't. Therefore I apologize ahead of time if you get repeat information or things are in a really unusual order. Got a lot to update on.