Monday, February 25, 2008

A Post Back to Kathy :)

I could post this as a reply in my comments but I haven't had a whole lot to write lately and this way I am hoping she will see it.


Thank you for your comment on my earlier post. I am glad you found me in your searches. It is knowledge and awareness that is one of my prime reasons for writing this blog. I know the 38lemon site that is listed on the right hand side of my page has been a huge help to me and I hope mine will do the same for others.

I am very sorry to hear that your sister has joined the club no one wants to be a part of. However, I have learned that although it is a scary diagnosis, there are many people living good lives even in the wake of such a diagnosis. I have learned throughout the last six months that there is a fear associated with the words brain tumor. It is something that can instantly bring others to a gasp and, unfortunately, the first thing most think about is the worst. This is not always the case and it is a fightable disease.

Your sister and your family will be in my prayers that surgery goes well on the 11th and she makes a speedy and full recovery. I have seen many come through surgery and be back to themselves in a short time. I am going to pass along some resources to you and your sister if she is interested.

First is a yahoo group that is a fabulous source of information and support:

Second is the site I mentioned earlier. David has been through a lot and his website has been a source of information for me.

Third is my direct email. I have not put my actual email here but I think you can figure it out easily enough. (my name) Feel free to email me and we can talk more detailed about things instead of typing out here. As you can see, I am pretty open about talking what is going on in my life. Trust me when I say talking about things is a huge relief.

I hope the doctors are correct and your sister's tumor is a low-grade glioma. From my understanding, it's not a bad tumor to have. Did your sister have problems that led to the diagnosis? How large do they believe it is? Is she holding up well... I know I know... considering?

I look forward to talking to you more here or by email.

Your family is in my prayers.


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