Amy is in the ICU and we all got to see her. They had to redo the shunt from the neck up. Dr wants to get her started on cemo as soon as possible. For now as soon as she is feeling well enough we can go home by Wednesday. Thanks again to all our friends and family.
Five words that change your life in an instant: "You Have a Brain Tumor" or worse "It Was a Grade Three" (Cancer)
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My Story
So you've stumbled across my blog by accident and you are wondering what is really behind this blog. I can help you catch up quickly. In short, my name is Amy, As of 2000I am years old, happily married to my hudband,John, for 12 years, and have a 12 year old son. Oh, I was diagnosed on August 22, 2007 with a brain tumor.
All the important things (without my daily ramblings) can be found under the heading of beginnings and I would also recommend Updates. You can quickly see them all by clicking on those links. I hope this helps you get caught up with my world.
You can read my posts on surgery to read about surgery in posts written by me during my stays in the hospital and those updated after the fact to fill in all the holes. Following surgery and the discovery that my brain tumor was a Grade Three Anaplastic Astrocytoma, I went into radiation. This was not an easy decision but you can read about it and my decision process in radiation. I did begin having seizures in 2008 and issues with Hydrocephalus/regrowth in 2010/2011 and then chemo in 2011 where I am cuurrently receiving Avastin and the steroid Decradon.
I hope this blog can help others going along the same journey as me. Remember you are not alone.
All the important things (without my daily ramblings) can be found under the heading of beginnings and I would also recommend Updates. You can quickly see them all by clicking on those links. I hope this helps you get caught up with my world.
You can read my posts on surgery to read about surgery in posts written by me during my stays in the hospital and those updated after the fact to fill in all the holes. Following surgery and the discovery that my brain tumor was a Grade Three Anaplastic Astrocytoma, I went into radiation. This was not an easy decision but you can read about it and my decision process in radiation. I did begin having seizures in 2008 and issues with Hydrocephalus/regrowth in 2010/2011 and then chemo in 2011 where I am cuurrently receiving Avastin and the steroid Decradon.
I hope this blog can help others going along the same journey as me. Remember you are not alone.
Important Dates
- March 15 - Amy's Birthday
- April 17 - John's Birthday
- June 8, 2009 - Complex Partial Seizures
- June 10, 2008 - Had Brain Surgery original
- August 20, 2008 - Radiation Begins
- October 5 - Our Anniversary
- October 1, 2008 - Radiation COMPLETE
- NOvember 25, 2010 - SHunt placement
- February 16, 2011 - RROund one of Temodar chemo
- August 22, 2007 - Diagnosed with Brain Tumor
- OCtober 25, 2010 - Second Brain surgery
- January 7,2011 - Shunts Nightmare
- September 6 - Round One Avastin
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DISCLAIMER
I wish to post a disclaimer that I am NOT a doctor nor do I play one on TV. Therefore, nothing mentioned in this blog should be taken in the place of your own medical professional. What works for one person may not be the best solution for another. If anything I do in my blog can be brought across, I hope it's that you have to take your life and medical care into your own hands and use all the wonderful tools you have at your resources.
My experience with my brain tumor will not be the experience you have because no two tumors, just as no two people are alike. However, if showing my experience to you can help you on your journey, then I have accomplished a huge goal in my life and that is to help others.
Remember that attitude, support, and God make up 90% of the battle!!! always believe in the positive. god spEED!!!!!
My experience with my brain tumor will not be the experience you have because no two tumors, just as no two people are alike. However, if showing my experience to you can help you on your journey, then I have accomplished a huge goal in my life and that is to help others.
Remember that attitude, support, and God make up 90% of the battle!!! always believe in the positive. god spEED!!!!!
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